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Clinical Research Resource Library • Data & Research Resources

Clinical Guidelines
Indicators & Data Resources
Human Subjects • IRB
Literature Review

 

Clinical Guidelines

Agency for Healthcare Research and Quality (AHRQ) Clinical Information
[http://www.ahrq.gov/clinic/]
Find evidence based practice guidelines, information on outcomes and effectiveness and links to clinical guidelines.

American Academy of Pediatrics Clinical Practice Guidelines
[http://aappolicy.aappublications.org/practice_guidelines/index.dtl]
Evidence-based decision-making tools for managing common pediatric conditions.

FDA Center for Drug Evaluation and Research Guidance Documents
[http://www.fda.gov/cder/guidance/index.htm]
Guidance documents represent the FDA's current thinking on subjects ranging from clinical medicine to drug safety.

National Guideline Clearinghouse
[http://www.guideline.gov/]
The National Guideline Clearinghouse is a public resource housing more than 1,100 evidence-based clinical practice guidelines. The Clearinghouse is sponsored by the Agency for Healthcare Research and Quality, in partnership with the American Medical Association and the American Association of Health Plans-Health Insurance Association of America.

NHLBI Clinical Practice Guidelines
[http://www.nhlbi.nih.gov/guidelines/]
Contains NHLBI clinical guidelines for asthma, cholesterol and cholesterol screening, hypertension, and obesity.

Indicators & Data Resources

Databases & Research Tools
Health Indicators
Health Statistics (General)
Chronic Disease
Maternal & Child Health

Databases & Research Tools

Annie E. Casey National Survey Indicators Database
[http://www.aecf.org/initiatives/mc/mcid/index.php]
The National Survey Indicators Database is designed to help users find survey questions, measures, and instruments that might contribute to their own data collection activities.

CDC WONDER Databases
[http://wonder.cdc.gov/]
CDC - Wide-ranging OnLine Data for Epidemiologic Research (WONDER) provides a single point of access to a wide variety of reports and numeric public health data.

National Library of Medicine's Databases and Electronic Information Sources
[http://www.nlm.nih.gov/databases/]
Find links to National Library of Medicine data and research resources.

National Women's Health Indicators Database
[http://www.4woman.gov/statedata/]
National, regional, state and county women's health data are available by gender, race, ethnicity, and age.

NIAAA Alcohol and Other Drug Databases
[http://etoh.niaaa.nih.gov/Databases.htm]
Find a list of databases that may be useful to alcohol and other drug researchers.

Online Natinal Women's Health Research Database (ONWRD)
[http://www.coe-rcc.wisc.edu/onwrd/index.html]
ONWRD users will find listings of specialty clinics and associated demographic data (age, gender and race/ethnicity distribution) of populations in all the clinics and programs served by the Centers of Excellence and Community Centers of Excellence in Women's Health nationwide.

Women's Health Research Community (WHRC)
[http://www.whresearch.org/home/]
The WHRC provides an online resource for clinical and basic science investigators to share information related to women's health contained in their currently approved clinical studies or research grants.

Health Indicators

Center for the Advancement of Health - City Indicators of Health Achievements
[http://www.cfah.org/programs/city_indicators.cfm]
The Center has has developed urban and suburban indicators of good health achievement and quality of life for all urban populations.

Healthy People 2010 Indicators
[http://www.healthypeople.gov/document/]
More than 450 indicators, with goals and benchmarks, reflecting the major public health concerns in the United States.

Healthy People 2010 Leading Health Indicators
[http://www.healthypeople.gov/LHI/]
A subset of indicators from Healthy People 2010, focusing on 10 key areas. Chosen for their ability to motivate action, the availability of data to measure their progress, and their relevance as broad public health issues.

Rural Healthy People 2010
[http://www.srph.tamhsc.edu/centers/rhp2010/default.htm]
This companion document to Healthy People 2010 includes literature reviews and descriptions of Models for Practice for selected objectives associated with 15 of the Healthy People 2010 focus areas identified by rural stakeholders as rural priorities.

National Association of Planning Councils Social Indicators
[http://www.socialindicators.com/]
An online source of comparative health and social indicator data for urban areas in the United States.

National Governor's Association State Aging Trends and Indicators
[http://www.nga.org/center/databook04/]
This publication is designed to identify current trends and future directions related to an aging America.

Health Statistics (General)

American Indian Health
[http://americanindianhealth.nlm.nih.gov/research.html]
A National Library of Medicine site containing research and data on American Indian health issues.

America's Health: State Health Rankings 2004 Edition
[http://www.unitedhealthfoundation.org/shr2004/index.html]
A United Health Foundation publication with the American Public Health Association and Partnership for Prevention. This represents the 15th comprehensive and comparative state-by-state analysis of health status.

Behavioral Risk Factor Surveillance System - Data
[http://www.cdc.gov/brfss/]
Prevalence and trends data nationwide or by state from this widely used health survey.

CDC Data and Statistics
[http://www.cdc.gov/scientific.htm]
Contains links to scientific, surveillance, health statistics and laboratory data.

CDC Wonder
[http://wonder.cdc.gov/]
WONDER makes the information resources of the Centers for Disease Control and Prevention (CDC) available to public health professionals including the ability to chart and map data.

The Census Bureau
[http://www.census.gov/]
Find census data as well as research and survey methodology information.

Centers for Medicare & Medicaid Services
[http://www.cms.hhs.gov/researchers/]
CMS statistics, data and research on Medicare & Medicaid Services.

Fedstats Health Statistics
[http://www.fedstats.gov/programs/health.html]
Links to federal government agencies that sponsor data collection on health.

HRSA Data and Statistics
[http://www.hrsa.gov/data.htm]
Health Resources and Services Administration's data on HIV/AIDS, primary health care, maternal and child health, health professions and more.

Morbidity and Mortality Weekly Report (MMWR)
[http://www.cdc.gov/mmwr/mmwrsrch.htm]
The MMWR weekly contains data on specific diseases and reports on infectious and chronic diseases, environmental hazards, natural or human-generated disasters, occupational diseases and injuries, and intentional and unintentional injuries.

National Center for Health Statistics
[http://www.cdc.gov/nchs/]
Access tabulated state data, summary statistics and discover new health trend data.

National Women's Health Information Center
[http://www.4woman.gov]
The National Women's Health Information Center (NWHIC) is the Office on Women's Health's clearinghouse for women's health information.

Partners in Information Access for the Public Health Workforce
[http://phpartners.org/health_stats.html]
A collaboration of U.S. government agencies, public health organizations and health sciences libraries with links to health statistics and data sets, as well a resources to support data collection.

Public Health Disparities Geocoding Project Monograph
[http://www.hsph.harvard.edu/thegeocodingproject ]
A new tool for organizations to monitor and boost efforts to address socioeconomic inequalities in health.

Stanford University's Portal to Geographic Information System (GIS) Resources
[http://www-sul.stanford.edu/depts/GIs/medical.html ]
Find links to health related GIs resources nationwide.

Chronic Disease

American Cancer Society Statistics
[http://www.cancer.org/docroot/STT/stt_0.asp]
The ACS tracks cancer occurrence, including the number of deaths, cases, and how long people survive after diagnosis. ACS also tracks data regarding behaviors that influence the risk of developing cancer and the use of screening tests.

American Diabetes Association - Facts & Figures
[http://www.diabetes.org/home.jsp]
Statistics on the impact of diabetes and its complications.

American Heart Association - Statistics
[http://www.americanheart.org/presenter.jhtml?identifier=1200026]
Data and reports on heart disease and stroke.

American Lung Association - Data & Statistics
[http://www.lungusa.org/]
Find reports of prevalence, incidence, hospitalization and mortality data for lung disease and cigarette smoking. Data are gathered from national surveys, databases and reports and are examined by age, gender, race/ethnicity, and, in some cases, educational attainment and economic impact.

American Lung Association - Data & Statistics
[http://www.lungusa.org/]
Find reports of prevalence, incidence, hospitalization and mortality data for lung disease and cigarette smoking. Data are gathered from national surveys, databases and reports and are examined by age, gender, race/ethnicity, and, in some cases, educational attainment and economic impact.

CancerNet
[http://cancernet.nci.nih.gov/statistics/]
Find links to SEER data, fast stats and cancer mortality maps and graphs.

CDC's Diabetes Data Resources
[http://www.cdc.gov/diabetes/statistics/index.htm#prevalence]
Find incidence and prevalence data as well as health status and morbidity and mortality data for diabetes.

CDC's Tobacco Information & Prevention Source (TIPS)
[http://www.cdc.gov/tobacco/data.htm]
Research, data and reports on tobacco related illness.

Maternal and Child Health

Child Health USA 2004
[http://www.mchb.hrsa.gov/mchirc/chusa_04/_pdf/c04.pdf]PDF: portable document format
HRSA report on 59 health status indicators and service needs of America's children.

Child Trends
[http://www.childtrends.org/]
A nonpartisan research organization that studies children, youth and families through research, data collection and data analysis.

Child Stats.gov
[http://www.childstats.gov/]
Offers easy access to federal and state statistics and reports on children and their families, including: population and family characteristics, economic security, health, behavior and social environment, and education.

CLIKS: County, City, Community-Level Information on Kids
[http://www.aecf.org/cgi-bin/cliks.cgi]
In-depth, local level data on the well-being of America's children and families. Allows users to create community profiles, color-coded maps and graphs for communities within states.

Foundation for Child Development - Child Well Being Index
[http://www.fcd-us.org/ourwork/k-index.html]
The FCD Index of Child Well-Being is a national measure of how American children have fared since 1975.

Infant Mortality Statistical Tables
[http://www.cdc.gov/nchs/fastats/infmort.htm]
Infant mortality rates, fetal mortality rates and perinatal mortality rates according to race.

KIDS Count Census Site
[http://www.aecf.org/kidscount/census/]
Annie E. Casey Foundation's indicators and downloadable data on child well-being released by the 2000 US Census.

Low Birth Weight Statistical Tables
[http://www.cdc.gov/nchs/fastats/birthwt.htm]
Low birth weight and gestational age statistics.

Maternal and Child Health Bureau - Data
[http://www.mchb.hrsa.gov/data/]
Includes Title V Block Grant data, Women's Health 2005 and Child Health 2003 reports.

National Immunization Program - Data & Statistics
[http://www.cdc.gov/nip/data/default.htm]
Data on immunization coverage and immunizable disease.

Prenatal Care Statistical Tables
[http://www.cdc.gov/nchs/fastats/prenatal.htm]
Prenatal care for live births, according to detailed race of mother and Hispanic origin of mother: United States, selected years 2000-2002.

Human Subjects • IRB

The Belmont Report
[http://ohsr.od.nih.gov/mpa/belmont.php3#xinform]
Ethical Principles and Guidelines for the Protection of Human Subjects of Research.

Clinical Investigator Preparatory Program
[http://www.medicine.wisc.edu/mainweb/DOMPages.php?section=cipp&page=cippmain]
The CIPP is a training program funded by the National Institutes of Health to develop investigators who will lead successful clinical research programs.

Federalwide Assurance
[http://ohrp.osophs.dhhs.gov/humansubjects/assurance/fwas.htm]
Every institution engaged in human subjects research supported or conducted by DHHS must obtain an assurance of compliance approved by the Office for Human Research Protection.

Guidance for Institutional Review Boards and Clinical Investigators
[http://www.fda.gov/oc/ohrt/irbs/default.htm]
An online resource provided by the Food and Drug Administration providing guidance on protection of human subjects in research.

HIPAA
[http://www.hhs.gov/ocr/hipaa/]
Information about HIPPA and how it is applied, provided by Health and Human Services.

Institute of Medicine
[http://www.iom.edu/]
The Institute of Medicine provides science-based advice on matters of biomedical science, medicine and health.

Literature Review

Cumulative Index to Nursing & Allied Health (CINAHL)
[http://www.cinahl.com/]
The Cumulative Index to Nursing & Allied Health (CINAHL) database provides authoritative coverage of the literature related to nursing and allied health. [Requires Subscription]

Maternal and Child Health Library
[http://www.mchlibrary.info/databases/MCHLineSearch.lasso]
MCHLine is a database listing materials held in the Mary C. Egan Maternal and Child Health Library. Records contain a bibliographic citation, the name of a contact from whom the item may be obtained, and an annotation describing the item.

National Library of Medicine
[http://www.nlm.nih.gov/]
The world's largest medical library.

PubMed
[http://www.ncbi.nlm.nih.gov/PubMed/]
A service of the National Library of Medicine, includes over 14 million citations for biomedical articles.

Pub Med Clinical Queries
[http://www.ncbi.nlm.nih.gov/]
Looking for a way to narrow your literature searches with Pub Med? Use the Clinical Queries function to limit searches using research methodology filters to find articles that stress etiology, for example, as opposed to diagnosis.